Home https://server7.kproxy.com/servlet/redirect.srv/sruj/smyrwpoii/p2/ Health https://server7.kproxy.com/servlet/redirect.srv/sruj/smyrwpoii/p2/ A woman with a rare muscle disease sings to exercise her lungs

A woman with a rare muscle disease sings to exercise her lungs

“If I can no longer sing a certain note or hold it for a long time, I know I may have lost weight,” she told CNN.

The degenerative condition affects muscle movement and respiration. Hali was diagnosed when she was nine months old and could never walk. And once easy tasks have now become impossible for her.

“When I was young, I could turn the door handles, and over time I couldn’t even raise my hand, not even turn a knob.”

Exit through the song

Hali was three years old when her father introduced her to music. Since then, singing and songwriting have served as a healthy way out.

Tabitha Hali (bottom left), shown here with her parents and sister, was introduced to the music by her father, who plays guitar and piano.

“I let go of all those emotions and I feel so much better.”

Hali is no stranger to success. She graduated summa cum laude from Pace University in 2006 with a bachelor’s degree in computer science and a minor in mathematics and music. Today, she is vice president at JP Morgan Chase.

Singing is not Hali’s only way to deal with her neurological condition. She meets regularly with professional and physiotherapists. It works through daily range of motion exercises. And she works with home health workers who help her 24 hours a day. At night she sleeps with a fan. It is a physical and mental test. But the music supports it.

Message in each song

Hali releases her first album “I wrote life” in 2019. Through her lyrics she shares stories of triumphs and challenges.

“Whenever I feel really depressed about myself, like I can’t do something, I just start writing, then I sing about it.”

She titled her first single “I’m Capable”.
Tabitha Hali performs at her 2019 New York album release party.

“It’s not the first advocacy song I’ve written, but it strikes at home because it’s parallel to that feeling when I was used to people staring at me on the street or people constantly telling me I couldn’t do something.”

“This particular song reminds me that I can. I can help someone. I can be someone. I can be generous to someone. And most importantly, I can be loved like everyone else.”

Halle, shown here with her band, shines at the release of her album in New York in 2019.

Hali advocates for the rights of people with disabilities during her live performances, educating her audience about things that people with physical challenges struggle with, not just mobility issues.

“There can even be simple accommodation, with people knowing they have an assistant at all times.”

Its main message is about empowerment. She hopes her songs about life, hardships and inspiration will motivate others to strive for what they want in life.

“If you don’t give up, you will see that you will succeed, whatever your goal is,” Hali said. “Don’t let anyone make you feel like you can’t.”

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