About Miguel Teixeira da Luz, 1 month and 7 months, continues to remind you that the retardation of the Atrofia Muscular Espinhal (AME) has been diagnosed with 5 months of illness.
It is a matter of course that the Estado de Município deveriam pagar pelas doses do Spinraza. The remark is applied to the quadro dose of the compound, the quadro quatro meses, the quotient of the quantum dose, the dose of the drug.
Cada do remédio, which was imported into the United States, with R $ 300 million. It was decided by the agosto, that it was a matter of time for a treatmento começasse. And the nunca recebeu and medicação is a continuous day and sofrer com os efeitos degenerativos da doença.
Uma nova decidedo pegou todos of surprise. The Juiz de Juventude, Ricardo Alexandre Fiúza, has been sentenced to Juventus by Juventude, 1
Cristina da Luz, 28, who has been involved in international treatment and treatment, revealed that he was the sabndo desta última decisão on Terça-Feira (8). A sentimento de impotência, ainda mais por estar acompanhando o filho em mais uma das incontáveis internações, that espresso es esitadas caso Miguel estivesse recebendo as do do Spinraza, segundo ela.
Cristina explains that the conversation com has been outraged, because it is a matter of concern that it is a remission of the effectiveness of the melhora and qualidade de vida. A family is not the same as the criterion used to determine and determine.
A pediatrician, Camila Duarte, who is also a medical doctor, is of the opinion that the patient has been comfortably involved in the process of doing so Spinraza, que não cura, mas que retardada os sintomas. At the Terça-feira (15), and the family organize a protest of the frente and the Forum of Nereu Ramos, em Lages, at 15:30, devido and indeferimento da sentença
O que é AME
A Atrofia Muscular Espinhal (AME) is a neurodegenerative disease, the hereditary autosomal recessive, which is necessary for the ambulance of progenitors, especially when it comes to the genesis and sperm of the embryo of the herpes mesothelioma gene. Characterization of porous causar fraqueza is the progressive muscular atrophy, AME prejudices movable volunteer bone as a segurar of cabeça, sentar e andar.