“Kids, I’m sorry to say that, but it’s a big deal. It’s going to hurt,” Ellie told CNN’s Chris Cuomo on Monday. “You just have to face the truth: Sometimes you’re not well.”
Ellie described being sick, sick and tired. But as tired as he wanted to be, he told Cuomo he couldn̵
“My body is just like no,” Ellie said.
Lipman said doctors initially deleted Ellie and his illness many times. First when they are diagnosed, then when their symptoms persist, and even when Ellie’s temperature stays low for months.
“No one would really believe us that we’re still sick, and when you continue to be disbelieved, you stop believing in yourself,” Lipman said.
Lipman is still struggling with symptoms. He said he wakes up most mornings with pain like a broken shoulder, can’t climb stairs without gasping, and can’t even prepare dinner for his family, as he enjoys doing because he falls asleep.
“One of the important things is to keep talking to your doctor, and doctors need to keep listening to your patients,” Lee said. “Indeed, something is unfolding before our eyes that we need before our eyes, which we actually need to come together with our patients and with ourselves as researchers and as doctors to try to help heal.”
Lee recommended, in addition to regular conversations with doctors, long-distance carriers to have as much sleep, movement and leafy vegetables as possible.