Home https://server7.kproxy.com/servlet/redirect.srv/sruj/smyrwpoii/p2/ Health https://server7.kproxy.com/servlet/redirect.srv/sruj/smyrwpoii/p2/ “It’s horrible”: parents struggle to get help for children with long covid | Long Covid

“It’s horrible”: parents struggle to get help for children with long covid | Long Covid

Ohn At Christmas, Gail Jackson’s 16-year-old daughter said she was in so much pain that she thought she was going to die. Liliana was briefly admitted to hospital with Kovid in September. Her symptoms never disappeared and new ones appeared over time.

“For months, she had had a relentless, excruciating headache, nausea, tinnitus, fatigue and insomnia, but the worst was the excruciating nerve pain,”

; Jackson said. “I couldn’t even touch her without her screaming in pain.”

On Christmas morning, Jackson took her to the hospital with her daughter, who was vomiting from pain in the passenger seat. When they reached the hospital, however, the A&E doctor said there was no such thing as Covid in children. “He said she just had to go home and get on with her life,” Jackson said. “It was a jaw drop.”

It is extremely rare for children and young people to become infected with severe Covid, but recent research has shown that even a mild or asymptomatic infection can lead to prolonged Covid in children. A study at UCL investigated Covid for a long time in 11- to 17-year-olds who were not hospitalized with the disease.

“The National Bureau of Statistics found that after 12 weeks, 7% of two to 11-year-olds, 8% of 12- to 16-year-olds and 11.5% of 17- to 24-year-olds had symptoms,” said Dr Nisreen Alwan. , Associate Professor of Public Health at the University of Southampton.

Nice, the National Institutes of Health and Recommendations, recommends more research to provide guidance on how children and young people are affected and how they can be treated. However, there is no definition of the case of long-term Covid in children and young people as there is in adults.

In the absence of this definition and guidance, parents say they have been fired or treated with suspicion by medical professionals for their child’s unexplained symptoms.

One problem, says the Royal College of Pediatrics and Child Health, is that rehabilitation services for children severely affected by, for example, symptoms of chronic fatigue are “completely inadequate” in many parts of the country.

“We are excited to see a high-quality study of the symptoms seen in some children after Covid,” a spokesman said. “One of the things these studies hope to find is which symptoms are related to the effect of the virus (many viruses can leave people with post-viral symptoms such as chronic fatigue) and which are the result of a blockage or other impact on the pandemic effects. “

Francis Simpson with his son Magnus, six
Francis Simpson with his son Magnus, six. She is the co-founder of the support and advocacy group Long Covid Kids

Kate and her 12-year-old son Max say they had to fight for their GP to believe them. “We’ve been living with Covid’s long-term effects for more than a year,” Kate said. “It was a long train ride with horrifying symptoms ranging from chest pain, shortness of breath, red eyes, stomach problems, muscle and joint pain, to hives, to name a few.

“GPs deal with security, but there is no security here, just a lot of new symptoms. We have been endlessly moved between the children’s and mental health services and the GP, but still no one has any idea how to help my son. “

Janet * is sure that her two teenage daughters have had Kovid for a long time. “I am a senior nurse and I still feel protected and fired by pediatricians,” she said. “Nothing happened unless I threatened to complain. There are just constant attempts to push me away, hinting that the severity of my daughters’ symptoms is exaggerated. “

Anna said her experience with her 12-year-old son was “barbaric and horrible.” “Sending a child away from A&E when he screams in pain and insists that everything is in his head – what happened to us – is careless and criminal,” she said.

Melania * had a similar experience with her two-year-old daughter. “She has been having seizures and losing consciousness since October, but doctors are dismissive to the point of telling me I’m an anxious mother and I need to calm down because my daughter’s children aren’t affected by Covid or Covid for a long time.”

Ruth believes her 15-year-old daughter, Sue, also has Kovid. “If they don’t believe us now, how can we even hope to understand what long-term impact this condition can have on our children?” She said. “It’s awful.”

Francis Simpson, a professor of psychology at the University of Coventry, co-founded the support and advocacy group Long Covid Kids in October after her two children, Saskia, now 10, and Magnus, now six, developed the condition. The membership is over 2000 parents and is growing by about 100 per day.

“Many parents on our site have had poor care for their children, including diagnoses of anxiety in the child and even, in some cases, some form of Munchausen through a parent’s attorney,” Simpson said. “Even those doctors who supported were honest in admitting that there was no research and no answers.”

Michael Rosen, the former author of a children’s laureate who spent 47 days in intensive care after dating Covid, has agreed to be a trustee of the group.

“It turns out that this is a neglected and special area of ​​people affected by Covid,” he said. “We allowed the common understanding to be spread that children do not receive Covid and / or if they do, they do not make it worse and that if they do, they do not receive Covid for long. It is clear that things are not so simple and we need more details and more statistics to tell us more. “

* Some names have been changed.

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