Nicolas Mendelssohn, Vice President of Facebook for Europe, Middle East and Africa, started a new charity to find a cure for the currently untreatable blood cancer that she and hundreds of thousands of other people have.
"Despite hundreds of thousands of people living with follicular lymphoma, it has a very low profile and relatively little investment in the disease," Mendelssohn said in a statement sent to Yahoo Finance UK.
"The average 20-year survival from diagnosis may look good on paper, but I'm in my 40s with a husband and four beautiful children who I want to see grow up. This is not enough and I am not satisfied when we know that knowledge and technology are available, which gives a light within our understanding. "
In the winter of 2016, Mendelssohn received the devastating news that she had received incurable blood cancer, follicular lymphoma.
<p class = "canvas-atom canvas-text Mb (1.0em) Mb (0) – sm Mt (0.8em) – sm" type = "text" content = " See the full interview with Nicola Mendelsohn Global Change Agents here "data-reactid =" 27 "> Watch the full interview with Nicola Mendelsohn's Global Change Agents here
<p class =" canvas-atom canvas-text Mb (1.0em) Mb (0) – sm Mt (0.8em) – sm "type =" text "content =" In a previous interview with & nbsp; Global Change Agents with Liana Brinded & [nbsp; show, Mendelssohn said that "this weekend was without a doubt – since I was a little on the limb, we didn't know what might not be – the worst weekend of my life." "data-reactid =" 28 "> In a previous interview w i Yahoo Finance UK International Show Global Change Agents with Liana Brinding Mendelssohn said "this weekend was without a doubt – since I was a bit on the limb, we didn't know what could have been – the worst weekend since my life. "
" I managed to go about 18 months before I needed the treatment I had last summer and had to do chemo and immunotherapy, which is not … I mean, it was horrendous.
She emphasized that not all therapies and cancers are the same and that people can respond very differently to treatment. The four-legged married mother praised the support of her family and doctors.
"I was able to cope. I had a lot of support and I was lucky and I had great doctors and now that's part of me. I will continue to monitor myself. I feel good. I feel good, "Mendelssohn said.
<p class =" canvas-atom canvas-text Mb (1.0em) Mb (0) – sm Mt (0.8em) – sm "type =" text "content =" In end of last year Mendelssohn & nbsp; revealed that her cancer had gone into remission . "Data-reactid =" 32 "> Mendelssohn revealed at the end of last year that her cancer had gone into remission.
Results after a 6-month chemo -Imunotherapy, I'm in remission! Here I am on the first and last day of treatment.Thank you for the amazing nurses and nurses who helped me with this.Thank you family & friends & everyone in the work for the love and support that has given me you provided. pic.twitter.com/qjrHgrwmv5
– nicola mendelsohn (@nicolamen) December 16, 2018
<h2 class = "canvas-atom canvas-text Mb (1.0em) Mb(0) –sm Mt (0.8em) – sm "type =" text "content =" What is follicular lymphoma "data-reactid =" 34 "> What is follicular lymphoma
] Public awareness of follicular lymphoma is not high, with cancer being the most common low-grade non-Hodgkin's lymphoma, with an estimated 2,000 people being diagnosed with the disease each year in the UK alone.
About 20% of those diagnosed have a particularly acute form of follicular lymphoma with a poor prognosis
For 80%, the disease can mean decades of chronic form, faced with the worry of not knowing when the disease will return and often a daily battle with challenging symptoms or long-term side effects of treatment.
"The amount of funding for follicular lymphoma studies has declined relatively over time and, despite advances, the medical and research community does not yet understand follicular lymphoma as we would like or well enough to identify treatments for all patients." , says Dr. Jessica Okosun, a senior lecturer in clinical affairs at the Barts Cancer Institute and a hematologist consultant at St. Bartholomew's Hospital and a scientific advisor to the foundation.
<p class = "canvas-atom canvas-text Mb (1.0em) Mb (0) – sm Mt (0.8em) – sm" type = "text" content = "When Mendelssohn was first diagnosed, she spent the next few months researching her condition until she encountered & nbsp; Living with Follicular Lymphoma in the Facebook Group . The closed group already has more than 6,000 members. "Data-reactid =" 40 "> When Mendelssohn was first diagnosed, she spent the next few months researching her condition until she came across a Facebook group with "Follicular Lymphoma Living." The closed group now has more than 6,000 members.
<p class = "canvas-atom canvas-text Mb (1.0em) Mb (0) – sm Mt (0.8em) – sm" type = "text" content = "She said on & nbsp; Global Change Agents with Liana Brinding : "They are my best source of advice and inspiration and sound board when I just go" has anyone … We share deeply personal things with each other because we're there to help. "" data-reactid = "41"> She told Global Change Agents with Liana Brinding : "They're my best source of advice and the inspiration and the sound of the board when I just go "has anyone had … boko personal things to each other because we are there to help nothing else. "
After starting the charity, Mendelssohn wanted to point out that years later she was already the administrator of the group on Facebook and" we have diagnosed people in their 20s and late teens. To them, if they are told that they can have 20 years to live their lives around ongoing and exhausting treatment, is inexplicable. "
Nicky Greenhall, co-administrator of the Facebook group Living with Follicular Lymphoma, added:" Living with a chronic and often invisible condition like follicular lymphoma can feel isolating, and cancer is a terrible word.
"Because this form of blood cancer has received so little attention when I was diagnosed in 2014, there was almost no information and certainly no support networks to go to. "
" When I started the Facebook group "Live with Follicular Lymphoma". I was looking for a sense of belonging at a time when I was feeling very lost and alone. I never expected her to become the community she has.
"I am so excited to see how the launch of the Follicular Lymphoma Foundation will energize our community and help them see themselves."
<h2 class = "canvas -atom canvas-text Mb (1.0em) Mb (0) – sm Mt (0.8em) – sm "type =" text "content =" Raising Awareness of Invisible Disease Data "-reactid =" 55 "> Invisible Disease Awareness
To raise awareness, the charity launched with the support of celebrities such as singer Katherine Jenkins and actor Tracy Ullman in an ad campaign by The & Partnership. It features images of one of the most famous photographers in the world – Rankin. His photography aims to "make the invisible, the visible," using purple makeup – similar to the dye used to make the disease visible under a microscope – to reveal the often invisible disease.
<p class = "canvas- pay-atom atom Mb (1.0em) Mb (0) – sm Mt (0.8em) – sm" type = "text" content = " READ MORE: Like Facebook VP Nicola Mendelsohn uses groups to navigate her cancer diagnosis "data-reactid =" 58 "> READ MORE: How Facebook VP Nicola Mendelsohn uses groups to navigate her cancer diagnosis
has also created an augmented reality Instagram filter that allows users to "discover" the lymphatic system on people's faces, depicted in shiny purple, developed by Myreality.design, to help raise awareness elicitation for follicular lymphoma and to stimulate donations.
"In addition to working to find new critical treatments and treatments for follicular lymphoma, the Foundation also aims to raise awareness of this invisible disease and help people find supportive communities, such as the Facebook group Living with follicular lymphoma, "which Nicholas helps run," says Dr. Okosun.