What's new: There is an "urgent need" to create an international registry of all human genome research, which they hope will be partially enforced through publishers and research grant makers who would require registration prior to allowing studies to receive grant money or have their results published, according to Margaret A. Hamburg, co-chair of the committee, who spoke at the press conference
"We agree that it is irresponsible at this time for anyone to proceed with a clinical application of human germline editing, "
Details: The Committee said the recommendations are based on the principles of transparency, inclusivity and responsibility.
- A central registry for both somatic (non-heritable) and germline genetic cell research is
- WHO should act as an information resource for all countries and should involve a broader range of stakeholders
- The Committee will set up various subcommittees to develop the standards, which must be inclusive of all types of cultures and technological advances. "over the next 18 months, Hamburg says their mandate is to look at the broader discussion of what is the best framework for responsible stewardship." Hamburg says there will be at least 3 more in-person meetings of the expert advisory committee, which includes scientists from the US, China and elsewhere, plus various subcommittee and online discussions. They expect to make final recommendations to the WHO's general manager in about 18 months.